Xinning Gui
Yu Chen
Skip Abstract Section
Abstract
We report a study of peer support in online health communities for pregnancy care along three gestational stages (trimesters) to investigate how pregnant women seek and receive peer support during different stages of pregnancy. Using Babycenter.com as our research setting, we found that pregnant women sought peer support due to constrained access to healthcare providers, dissatisfaction with healthcare services/medical advice, limited offline social support, and unavailability of information in other venues. While the particular topics of concern typifying each trimester were distinct, pregnant women consistently sought advice, informal and formal knowledge, reassurance, and emotional support from peers during each stage of pregnancy. BabyCenter.com peers provided support by leveraging their own experiential knowledge and passing along clinical expertise acquired during the course of their own healthcare. We discuss design implications for health services and IT systems that meet pregnant women's temporal and multi-faceted needs during prenatal care.
- Teresa Almeida, Rob Comber, and Madeline Balaam. 2016. HCI and Intimate Care as an Agenda for Change in Women's Health. In Proc. of CHI 2016, 2599--2611. Google Scholar
Digital Library
- Babycenter.com. How pregnant am I? Pregnancy by weeks, months, and trimesters. Retrieved March 2, 2017 from https://www.babycenter.com/0_how-pregnant-am-i-pregnancy-by-weeks-months-and-trimesters_10326878.bcGoogle Scholar
- BabyCenter community team. Welcome to Mommy Mentors - First Trimester! Retrieved April 21, 2017 from https://community.babycenter.com/post/a41818240/welcome_to_mommy_mentors_-_first_trimesterGoogle Scholar
- Jordan Brigitte. 1997. Authoritative knowledge and its construction. In Childbirth and authoritative knowledge: Cross- cultural perspectives, Robbie E. Davis-Floyd and Carolyn Sargent (eds.). University of California Press, Berkeley, CA, 55--79.Google Scholar
- H A Cahill. 2001. Male appropriation and medicalization of childbirth: an historical analysis. J. Adv. Nurs. 33, 3 (February 2001), 334-- 42.Google ScholarCross Ref
- Josepa Canals, Griselda Esparó, and Joan D Fernández-Ballart. 2002. How anxiety levels during pregnancy are linked to personality dimensions and sociodemographic factors. Pers. Individ. Dif. 33, 2 (2002), 253--259.Google ScholarCross Ref
- Claudia Carissoli, Daniela Villani, and Giuseppe Riva. 2016. An Emerging Model of Pregnancy Care: The Introduction of New Technologies in Maternal Wellbeing. In Integrating T echnology in Positive Psychology Practice. IGI Global, 162--192.Google Scholar
- Martha Cook Carter, Maureen Corry, Suzanne Delbanco, Tina Clark-Samazan Foster, Robert Friedland, Robyn Gabel, Teresa Gipson, R. Rima Jolivet, Elliott Main, Carol Sakala, Penny Simkin, Kathleen Rice Simpson, and Kathleen Rice Simpson. 2010. 2020 Vision for A High-Quality, High-Value Maternity Care System. Women's Heal. Issues 20, 1 (January 2010), S7--S17.Google Scholar
- C S Carver, M F Scheier, and J K Weintraub. 1989. Assessing coping strategies: a theoretically based approach. J. Pers. Soc. Psychol. 56, 2 (February 1989), 267--83. Retrieved July 2, 2017 from http://www.ncbi.nlm.nih.gov/pubmed/2926629Google ScholarCross Ref
- C H Chen, H M Chen, and T H Huang. 1989. Stressors associated with pregnancy as perceived by pregnant women during three trimesters. Gaoxiong Yi Xue Ke Xue Za Zhi 5, 9 (September 1989), 505--9. Retrieved April 9, 2017 from http://www.ncbi.nlm.nih.gov/pubmed/2607562Google Scholar
- Munmun De Choudhury, Scott Counts, and Eric Horvitz. 2013. Predicting postpartum changes in emotion and behavior via social media. In Proc. of CHI 2013, 3267. Google ScholarDigital Library
- Munmun De Choudhury, Scott Counts, Eric J. Horvitz, and Aaron Hoff. 2014. Characterizing and predicting postpartum depression from shared facebook data. In Proc. of CSCW 2014, 626--638. Google ScholarDigital Library
- Juliet M. Corbin and Anselm L. Strauss. 2015. Basics of qualitative research : techniques and procedures for developing grounded theory (4th. ed.). SAGE Publications, Inc.Google Scholar
- Genevieve A Cowie, Sophie Hill, and Priscilla Robinson. 2011. Using an online service for breastfeeding support: what mothers want to discuss. Health Promot. J. Austr. 22, 2 (August 2011), 113--8. Retrieved July 3, 2017 from http://www.ncbi.nlm.nih.gov/pubmed/21819353Google ScholarCross Ref
- Robbie. Davis-Floyd. 2003. Birth as an American Rite of Passage. University of California Press.Google Scholar
- Eugene R Declercq, Carol Sakala, Maureen P Corry, and Sandra Applebaum. 2007. Listening to Mothers II: Report of the Second National U.S. Survey of Women's Childbearing Experiences: Conducted January-February 2006 for Childbirth Connection by Harris Interactive(R) in partnership with Lamaze International. J. Perinat. Educ. 16, 4 (2007), 9--14.Google Scholar
- Patricia Drentea and Jennifer L. Moren-Cross. 2005. Social capital and social support on the web: the case of an internet mother site. Sociol. Heal. Illn. 27, 7 (November 2005), 920--943.Google Scholar
- Henrik Enquist and Konrad Tollmar. 2008. The Memory Stone -- A Personal ICT Device in Health Care. In Proc. of NordiCHI 2008, 103--112. Google ScholarDigital Library
- Daniel A. Epstein, Nicole B. Lee, Jennifer H. Kang, Elena Agapie, Jessica Schroeder, Laura R. Pina, James Fogarty, Julie A. Kientz, and Sean A. Munson. 2017. Examining Menstrual Tracking to Inform the Design of Personal Informatics Tools. In Proc. of CHI 2017, 6876--6888. Google ScholarDigital Library
- Marilyn Evans, Lorie Donelle, and Laurie Hume-Loveland. 2012. Social support and online postpartum depression discussion groups: A content analysis. Patient Educ. Couns. 87, 3 (June 2012), 405--410.Google ScholarCross Ref
- Adam Fourney, Ryen W. White, and Eric Horvitz. 2015. Exploring Time-Dependent Concerns about Pregnancy and Childbirth from Search Logs. In Proc. of CHI 2015, 737--746. Google ScholarDigital Library
- F. Maxwell Harper, Daphne Raban, Sheizaf Rafaeli, and Joseph A. Konstan. 2008. Predictors of Answer Quality in Online Q&A Sites. In Proc. of CHI 2008, 865--847. Google ScholarDigital Library
- Andrea Hartzler and Wanda Pratt. 2011. Managing the Personal Side of Health: How Patient Expertise Differs from the Expertise of Clinicians. J. Med. Internet Res. 13, 3 (August 2011), e62.Google ScholarCross Ref
- Jonathan Heron, Thomas G O'Connor, Jonathan Evans, Jean Golding, and Vivette Glover. 2004. The course of anxiety and depression through pregnancy and the postpartum in a community sample. J. Affect. Disord. 80, 1 (2004), 65--73.Google ScholarCross Ref
- Bree Holtz, Andrew Smock, and David Reyes-Gastelum. 2015. Connected Motherhood: Social Support for Moms and Moms-to-Be on Facebook. Telemed. e-Health 21, 5 (May 2015), 415--421.Google Scholar
- Jina Huh and Mark S Ackerman. 2012. Collaborative Help in Chronic Disease Management: Supporting Individualized Problems. In Proc. of CSCW 2012, 853--862. Google ScholarDigital Library
- Lisa M. Kopf, Simone Graetzer, and Jina Huh. 2015. Videos influence behavior change measures for voice and speech in individuals with Parkinson's disease. In Proc. of the conference on Wireless Health 2015, 1--7. Google ScholarDigital Library
- Pirkko Kouri, Hannele Turunen, Kerttu Tossavainen, and Seppo Saarikoski. 2006. Pregnant Families' Discussions on the Net-From Virtual Connections Toward Real-Life Community. In Journal of Midwifery & Women's Health, 279--283.Google Scholar
- Klaus. Krippendorff. 2004. Content analysis : an introduction to its methodology (2nd ed.). SAGE Publications.Google Scholar
- Neha Kumar and Richard J. Anderson. 2015. Mobile Phones for Maternal Health in Rural India. In Proc. of CHI 2015, 427--436. Google ScholarDigital Library
- Briege M. Lagan, Marlene Sinclair, and W. George Kernohan. 2011. What Is the Impact of the Internet on Decision-Making in Pregnancy? A Global Study. Birth 38, 4 (December 2011), 336--345.Google ScholarCross Ref
- Debra Langan. 2012. Mother in the Middle and Self-care: Just One More Thing to Do. In Mediating Moms: Mothers in Popular Culture, Elizabeth Podnieks (ed.). McGill-Queen's University Press, 268--283.Google Scholar
- Ellen S. Lazarus. 1994. What Do Women Want?: Issues of Choice, Control, and Class in Pregnancy and Childbirth. Med. Anthropol. Q. 8, 1 (March 1994), 25--46.Google ScholarCross Ref
- Antoinette M. Lee, Siu Keung Lam, Stephanie Marie Sze Mun Lau, Catherine Shiu Yin Chong, Hang Wai Chui, and Daniel Yee Tak Fong. 2007. Prevalence, Course, and Risk Factors for Antenatal Anxiety and Depression. Obstet. Gynecol. 110, 5 (November 2007), 1102--1112.Google Scholar
- Tzu-I Lee, Yih-Harn Chiang, Jiayi Guo, Mu-Tsz Chen, and Yue Chen. 2016. Dot-it: Managing Nausea and Vomiting for A Peaceful Pregnancy with Personal Pattern Exploration. In Proc. of CHI Extended Abstracts 2016, 20--25. Google ScholarDigital Library
- Thurmon E. Lockhart, Adam T. Barth, Xiaoyue Zhang, Rahul Songra, Emaad Abdel-Rahman, and John Lach. 2010. Portable, non-invasive fall risk assessment in end stage renal disease patients on hemodialysis. In Proc. of the conference on Wireless Health 2010, 84. Google ScholarDigital Library
- John Logie, Joseph Weinberg, F. Maxwell Harper, and Joseph A. Konstan. 2011. Asked and answered: On qualities and quantities of answers in online Q&A sites. In Proc. of the 2011 ICWSM Workshop on the Social Media Web, 24--31. Retrieved July 5, 2017 from https://www.semanticscholar.org/paper/Asked-and-Answered-On-Qualities-and-Quantities-of-Logie- Weinberg/5cd8ce4b86a37c632d5bc788590b3a9484b3df35Google Scholar
- Deborah Lupton. 1999. Risk and the ontology of pregnant embodiment. In Risk and sociocultural theory: New directions and perspectives, Deborah Lupton (ed.). Cambridge University Press, Cambridge, 59--85.Google Scholar
- Deborah Lupton. 2012. "Precious cargo": foetal subjects, risk and reproductive citizenship. Crit. Public Health 22, 3 (September 2012), 329--340.Google ScholarCross Ref
- Anne Drapkin Lyerly, Lisa M Mitchell, Elizabeth Mitchell Armstrong, Lisa H Harris, Rebecca Kukla, Miriam Kuppermann, and Margaret Olivia Little. Risk and the pregnant body. Hastings Cent. Rep. 39, 6, 34--42.Google Scholar
- Clare Madge and Henrietta O'Connor. 2006. Parenting gone wired: empowerment of new mothers on the internet? Soc. Cult. Geogr. 7, 2 (April 2006), 199--220.Google ScholarCross Ref
- Lena Mamykina, Drashko Nakikj, and Noemie Elhadad. 2015. Collective Sensemaking in Online Health Forums. In Proc. of CHI 2015, 3217--3226. Google ScholarDigital Library
- Lena Mamykina, Thomas N. Smyth, Jill P. Dimond, and Krzysztof Z. Gajos. 2016. Learning From the Crowd : Observational Learning in Crowdsourcing Communities. In Proc. of CHI 2016, 2635--2644. Google ScholarDigital Library
- Nina Martin and Renee Montagne. 2017. Round Ligament Pain During Pregnancy: Causes, Symptoms, and Treatment. NPR NEWS INVESTIGATIONS. Retrieved July 4, 2017 from http://www.webmd.com/baby/guide/pregnancy-round-ligament-pain#1Google Scholar
- Zohar Massey, Sharon Schindler Rising, and Jeannette Ickovics. 2006. CenteringPregnancy Group Prenatal Care: Promoting Relationship-Centered Care. J. Obstet. Gynecol. Neonatal Nurs. 35, 2 (March 2006), 286--294.Google ScholarCross Ref
- Abby McCormack and Neil S. Coulson. 2007. Individuals with eating disorders and the use of online support groups as a form of social support. Cyberpsychology J. Psychosoc. Res. Cybersp. 3, 2 (2007), article 5.Google Scholar
- Jenny McLeish and Maggie Redshaw. 2015. Peer support during pregnancy and early parenthood: a qualitative study of models and perceptions. BMC Pregnancy Childbirth 15, 1 (December 2015), 257.Google ScholarCross Ref
- D K Midmer. Does family-centered maternity care empower women? The development of the woman-centered childbirth model. Fam. Med. 24, 3, 216--21.Google Scholar
- Rinchen Pelzang. 2010. Time to learn: understanding patient-centred care. Br. J. Nurs. 19, 14 (July 2010), 912--917.Google Scholar
- Trevor Perrier, Nicola Dell, Brian DeRenzi, Richard Anderson, John Kinuthia, Jennifer Unger, and Grace John-Stewart. 2015. Engaging Pregnant Women in Kenya with a Hybrid Computer-Human SMS Communication System. In Proc. of CHI 2015, 1429-- 1438. Google ScholarDigital Library
- Tamara Peyton, Erika Poole, Madhu Reddy, Jennifer Kraschnewski, and Cynthia Chuang. 2014. "Every pregnancy is different": Designing mHealth interventions for the pregnancy ecology. In Proc. of DIS 2014, 577--586. Google ScholarDigital Library
- Kathleen Pine. 2016. The Work of Reuse: Birth Certificate Data and Healthcare Accountability Measurements. In Proc. of iConference 2016.Google ScholarCross Ref
- Kathleen H Pine. 2012. Fragmentation and Choreography: Caring for a Patient and a Chart during Childbirth. In Proc. of CSCW 2012, 887--896. Google ScholarDigital Library
- Kathleen H. Pine and Melissa Mazmanian. 2014. Institutional Logics of the EMR and the Problem of "Perfect" but Inaccurate Accounts. In Proc. of CSCW 2014, 283--294. Google ScholarDigital Library
- Emily Jane Ross. 2015. "I think it's self-preservation": risk perception and secrecy in early pregnancy. Health. Risk Soc. 17, 5--6 (August 2015), 329--348.Google ScholarCross Ref
- Barbara Katz Rothman. 1988. Tentative Pregnancy: Prenatal Diagnosis and the Future of Motherhood. Pandora Press, London.Google Scholar
- Anne H. Salonen, Marja Kaunonen, Päivi Åstedt-Kurki, Anna-Liisa Järvenpää, Hannu Isoaho, and Marja-Terttu Tarkka. 2011. Effectiveness of an internet-based intervention enhancing Finnish parents' parenting satisfaction and parenting self-efficacy during the postpartum period. Midwifery 27, 6 (December 2011), 832--841.Google ScholarCross Ref
- Yla R. Tausczik and James W. Pennebaker. 2010. The Psychological Meaning of Words: LIWC and Computerized Text Analysis Methods. J. Lang. Soc. Psychol. 29, 1 (March 2010), 24--54.Google ScholarCross Ref
- César Teixeira, Bárbara Figueiredo, Ana Conde, Alexandra Pacheco, and Raquel Costa. 2009. Anxiety and depression during pregnancy in women and men. J. Affect. Disord. 119, 1 (2009), 142--148.Google ScholarCross Ref
- The American College of Obstericians and Gynecologists. Ob-Gyns Redefine Meaning of "Term Pregnancy." Retrieved April 1, 2017 from http://www.acog.org/About-ACOG/News-Room/News-Releases/2013/Ob-Gyns-Redefine-Meaning-of-Term-PregnancyGoogle Scholar
- The Office on Women's Health at the U.S. Department of Health and Human Services. Stages of pregnancy. Retrieved March 1, 2017 from https://www.womenshealth.gov/pregnancy/youre-pregnant-now-what/stages-pregnancyGoogle Scholar
- C. F. van Uden-Kraan, C. H. C. Drossaert, E. Taal, B. R. Shaw, E. R. Seydel, and M. A. F. J. van de Laar. 2008. Empowering Processes and Outcomes of Participation in Online Support Groups for Patients With Breast Cancer, Arthritis, or Fibromyalgia. Qual. Health Res. 18, 3 (March 2008), 405--417.Google ScholarCross Ref
- Joseph B. Walther and Shawn Boyd. 2002. Attraction to computer-mediated social support. In Communication technology and society: Audience adoption and uses, Carolyn A. Lin and David J. Atkin (eds.). Hampton Press, Cresskill, NJ, 153--188.Google Scholar
- Richard W. Wertz and Dorothy C. Wertz. 1989. Lying-in : A History of Childbirth in America. Yale University Press.Google Scholar
- Chieh-Lin Wu, Bing-Hsun Wu, Yun-Ting Lin, Pengfei Wang, and Yining Zhou. 2016. Moments A Wearable Device for Early Stage AD Patients to Maintain Their Autonomy. In Proc. of CHI Extended Abstracts 2016, 74--79. Google ScholarDigital Library
- Sue Ziebland and Sally Wyke. 2012. Health and Illness in a Connected World: How Might Sharing Experiences on the Internet Affect People's Health? Milbank Q. 90, 2 (June 2012), 219--249. Received April 2017; revised July 2017; accepted August 2017Google ScholarCross Ref
Index Terms
- Investigating Support Seeking from Peers for Pregnancy in Online Health Communities
Recommendations
"Every pregnancy is different": designing mHealth for the pregnancy ecology
DIS '14: Proceedings of the 2014 conference on Designing interactive systemsThis paper presents the results of an ongoing study into the potential role of mobile or wireless health applications for targeting the prevention of excessive gestational weight gain in pregnant lower-income American women. Informed by a qualitative ...
An Exploration of African-American Pregnant Women's Information-Seeking Behavior in Detroit
ICTD '20: Proceedings of the 2020 International Conference on Information and Communication Technologies and DevelopmentIn the United States, African-American women are three times more likely to die of pregnancy-related issues, and 57% more likely to have miscarriages than White women. In part, this is due to deficiencies in the information ecology serving pregnant ...
Opportunities and Design Considerations for Peer Support in a Hospital Setting
CHI '17: Proceedings of the 2017 CHI Conference on Human Factors in Computing SystemsAlthough research has demonstrated improved outcomes for outpatients who receive peer support-such as through online health communities, support groups, and mentoring systems-hospitalized patients have few mechanisms to receive such valuable support. To ...
Comments