ABSTRACT
Verbal autopsy (VA) involves interviewing relatives of the deceased to identify the probable cause of death and is typically used in settings where there is no official system for recording deaths or their causes. Following the interview, physician assessment to determine probable cause can take several years to complete. The World Health Organization (WHO) recognizes that there is a pressing need for a mobile device that combines direct data capture and analysis if this technique is to become part of routine health surveillance. We conducted a field test in rural South Africa to evaluate a mobile system that we designed to meet WHO requirements (namely, simplicity, feasibility, adaptability to local contexts, cost-effectiveness and program relevance). If desired, this system can provide immediate feedback to respondents about the probable cause of death at the end of a VA interview. We assessed the ethical implications of this technological development by interviewing all the stakeholders in the VA process (respondents, fieldworkers, physicians, population scientists, data managers and community engagement managers) and highlight the issues that this community needs to debate and resolve.
- Anokwa, Y. et al. Stories from the field: Reflections on HCI4D experiences. Information Technologies and International Development 5(4) (2009), 101--115.Google Scholar
- Braa, J. et al. Participatory health information systems development in Cuba: The challenge of addressing multiple levels in a centralized setting. Proc. PD (2004), 5364. Google ScholarDigital Library
- Byass, P. Who needs cause-of-death data? PLoS Medicine 4(11) (2007), e333. doi:10.1371/journal.pmed.0040333Google ScholarCross Ref
- Byass, P., et al. Direct data capture using hand-held computers in rural Burkina Faso: Experiences, benefits and lessons learnt. Tropical Medicine and International Health 13(1) (2008), 25--30.Google ScholarCross Ref
- Chandramohan, D. et al. Ethical issues in the application of verbal autopsies in mortality surveillance systems. Tropical Medicine and International Health 10(11) (2005), 1087--1089.Google ScholarCross Ref
- DeRenzi, B. et al. E-IMCI: Improving paediatric health care in low-income countries. Proc. CHI (2008), 753762. Google ScholarDigital Library
- Grisedale, S., Graves, M., and Grünsteidl, A. Designing a graphical interface for healthcare workers in rural India. Proc. CHI (1997), 471--478. Google ScholarDigital Library
- Kahn K., Collinson, M. A., Gómez-Olivé, F. X., et al. Profile: Agincourt Health and Socio-demographic Surveillance System. International Journal of Epidemiology, 41 (2012), 988--1001.Google Scholar
- Ho, M., Smyth, T. N., Kam, M. and Dearden, A. M. Human-Computer Interaction for development: The past, present, and future. Information Technologies and International Development 5(4), 2009) 1--18.Google Scholar
- Ho, M., Owusu, E. K. and Aoki, P. M. Claim Mobile: Engaging conflicting stakeholder requirements in healthcare in Uganda. ICTD (2009), 35--45. Google ScholarDigital Library
- Lahti, R. A. and Pentillä, A. Cause-of-death query in validation of death certification by expert panel: Effects on mortality statistics in Finland. Forensic Science International 131 (2003), 113--124.Google ScholarCross Ref
- Luk, R., Ho, M. and Aoki, P.M. Asynchronous remote medical consultation for Ghana. Proc. CHI (2008), 743752. Google ScholarDigital Library
- Mathers, C. D. et al. Counting the dead and what they died from: An assessment of the global status of cause of death data. Bulletin of the World Health Organization 83 (2005), 171--177.Google Scholar
- Medhi, I., Jain, M., Tewari, A. et al. Combating rural child malnutrition through inexpensive mobile phones. NordiCHI (2012). Google ScholarDigital Library
- Soleman, N. et al. Verbal autopsy: Current practices and challenges. Bulletin of the World Health Organization 84 (2006), 239--245.Google ScholarCross Ref
- Verbal Autopsy Standards: The 2012 WHO Verbal Autopsy Standard (2012).Google Scholar
Index Terms
- A matter of life and death: practical and ethical constraints in the development of a mobile verbal autopsy tool
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