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It's not that i don't have problems, i'm just not putting them on facebook: challenges and opportunities in using online social networks for health

Published:19 March 2011Publication History

ABSTRACT

To understand why and how people share health information online, we interviewed fourteen people with significant health concerns who participate in both online health communities and Facebook. Qualitative analysis of these interviews highlighted the ways that people think about with whom and how to share different types of information as they pursue social goals related to their personal health, including emotional support, motivation, accountability, and advice. Our study suggests that success in these goals depends on how well they develop their social networks and how effectively they communicate within those networks. Effective communication is made more challenging by the need to strike a balance between sharing information related to specific needs and the desire to manage self-presentation. Based on these observations, we outline a set of design opportunities for future systems to support health-oriented social interactions online, including tools to help users shape their social networks and communicate effectively within those.

References

  1. Boyd, D. (2008) Taken Out of Context: American Teen Sociality in Networked Publics. Ph.D. Dissertation. U.C. Berkeley.Google ScholarGoogle Scholar
  2. Burke, M., Joyce, E., Kim, T., An, V., and Kraut, R. (2007) Introductions and requests: Rhetorical strategies that elicit response in online communities. In Proc Communites and Technologies 2007, 21--40.Google ScholarGoogle ScholarCross RefCross Ref
  3. Consolvo, S., Everitt, K., Smith, I., and Landay, J.A. Design requirements for technologies that encourage physical activity. (2006) In Proc. CHI 2006, 457--466. Google ScholarGoogle ScholarDigital LibraryDigital Library
  4. DiMicco, J.M. and Millen, D.R. Identity management: multiple presentations of self in facebook. (2007) In Proc. GROUP 2007, 383--386. Google ScholarGoogle ScholarDigital LibraryDigital Library
  5. Donath, J. and Boyd, D. Public Displays of Connection. (2004) BT Technology Journal 22, 4, 71--82. Google ScholarGoogle ScholarDigital LibraryDigital Library
  6. Ellison, N., Steinfield, C., and Lampe, C. The Benefits of Facebook "Friends:" Social Capital and College Students' Use of Online Social Network Sites. (2007) Journal of CMC 12, 4, 1143--1168.Google ScholarGoogle Scholar
  7. Farnham, S., et al. HutchWorld: clinical study of computer-mediated social support for cancer patients and their caregivers. (2002) In Proc. CHI 2002, 375--382. Google ScholarGoogle ScholarDigital LibraryDigital Library
  8. Frost, J. and Massagli, M. PatientsLikeMe the case for a data-centered patient community and how ALS patients use the community to inform treatment decisions and manage pulmonary health. (2009) Chronic Respiratory Disease 6, 4, 225 -229.Google ScholarGoogle Scholar
  9. Gilbert, E. and Karahalios, K. Predicting tie strength with social media. (2009) In Proc. CHI 2009, 211--220. Google ScholarGoogle ScholarDigital LibraryDigital Library
  10. Goffman, E. (1959) The Presentation of Self in Everyday Life. Anchor Books.Google ScholarGoogle Scholar
  11. Hwang, K.O., et al. Social support in an Internet weight loss community. (2010) International Journal of Medical Informatics 79, 1, 5--13.Google ScholarGoogle Scholar
  12. Joinson, A.N. Looking at, looking up or keeping up with people?: motives and use of Facebook. (2008) In Proc. CHI 2008, 1027--1036. Google ScholarGoogle ScholarDigital LibraryDigital Library
  13. Kawachi, I., Subramanian, S., and Kim, D. (2007) Social Capital and Health. Springer.Google ScholarGoogle Scholar
  14. Kramer, A.D. An unobtrusive behavioral model of "gross national happiness". Proceedings of the 28th international conference on Human factors in computing systems, ACM (2010), 287--290. Google ScholarGoogle ScholarDigital LibraryDigital Library
  15. Lamberg, L. Online Empathy for Mood Disorders. (2003) JAMA 289, 23, 3073 -3077.Google ScholarGoogle Scholar
  16. Lampinen, A., Tamminen, S., and Oulasvirta, A. All My People Right Here, Right Now: management of group co-presence on a social networking site. (2009) In Proc GROUP 2009, 281--290. Google ScholarGoogle ScholarDigital LibraryDigital Library
  17. Lasker, J.N., Sogolow, E.D., and Sharim, R.R. The role of an online community for people with a rare disease: content analysis of messages posted on a primary biliary cirrhosis mailinglist. (2005) Journal of Medical Internet Research 7, 1, e10.Google ScholarGoogle Scholar
  18. Maloney-Krichmar, D. and Preece, J. A multilevel analysis of sociability, usability, and community dynamics in an online health community. (2005) ACM TOCHI 12, 2, 201--232. Google ScholarGoogle ScholarDigital LibraryDigital Library
  19. Preece, J. Empathic communities: reaching out across the Web. (1998) interactions 5, 2, 32--43. Google ScholarGoogle ScholarDigital LibraryDigital Library
  20. Preece, J. Online Communities: Designing Usability and Supporting Socialbilty. (2000) John Wiley & Sons, Inc.. Google ScholarGoogle ScholarDigital LibraryDigital Library
  21. Skeels, M.M., Unruh, K.T., Powell, C., and Pratt, W. (2010) Catalyzing social support for breast cancer patients. In Proc. CHI 2010, 173--182. Google ScholarGoogle ScholarDigital LibraryDigital Library
  22. The Web Nurse. 25 Facebook Apps That Can Improve Your Health. (2010) http://mastersinnursingonline.com/ 2010/25-facebook-apps-that-can-improve-your-health/.Google ScholarGoogle Scholar
  23. Wicks, P., Massagli, M., Frost, J., et al. Sharing Health Data for Better Outcomes on PatientsLikeMe. (2010) Journal of Medical Internet Research 12, 2.Google ScholarGoogle Scholar
  24. Young, A.L. and Quan-Haase, A. Information revelation and internet privacy concerns on social network sites: a case study of facebook. (2009) In Proc Communities and Technologies, 265--274.. Google ScholarGoogle ScholarDigital LibraryDigital Library

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      cover image ACM Conferences
      CSCW '11: Proceedings of the ACM 2011 conference on Computer supported cooperative work
      March 2011
      764 pages
      ISBN:9781450305563
      DOI:10.1145/1958824

      Copyright © 2011 ACM

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      Publication History

      • Published: 19 March 2011

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